Hundreds get heart checks in memory of Toby, 23

Jenny Kirk,in Halesworthand
George King
News imageStephen Huntley/BBC A head and shoulders image of Jane Wilson wearing glasses and standing next to a picture of her son, Toby Chenery, who is wearing a black puffer jacket and holding a pint of drink while sitting at a table.Stephen Huntley/BBC
Jane Wilson said her son Toby Chenery showed no obvious signs of a serious heart condition before his death

Hundreds of young people have been given free heart screenings in memory of a 23-year-old man who died of an undiagnosed congenital heart condition.

Toby Chenery, who was seemingly fit and healthy and loved playing football, died unexpectedly in his sleep on 25 February last year.

Since then, his parents, Trevor Chenery and Jane Wilson, from Halesworth, Suffolk, have made it their mission to help others detect potential heart problems sooner.

This weekend, in partnership with charity Cardiac Risk in the Young (CRY), they hosted 200 free heart screenings at the town's Pear Tree Centre, which were booked up in just 15 minutes.

News imageHalesworth Town Football Club Toby is in the middle of the picture, smiling and looking towards the camera. He has brown hair, and is wearing a dark green top. In the background there is a lake, surrounded by lots of trees. Halesworth Town Football Club
Toby died last February in his sleep, just hours after returning home from playing football

Each participant had a 10-minute electrocardiogram (ECG) test, which can detect heart muscle disorders and electrical faults.

If something abnormal was found, they were told they would be sent for an echocardiogram, which is like an ultrasound for the heart.

If required, they would then be referred to either their GP or a hospital cardiology department.

News imageSupplied Toby Chenery wearing a black and white striped Halesworth football kit while playing football on a grass field. He is mid-run with the ball just a little way in front of him.Supplied
Toby was a keen footballer who played up to three times a week

Toby, who played for Halesworth Town, was one of at least 12 apparently fit and healthy young people aged 35 and under who died every week from undiagnosed heart conditions in the UK, according to CRY.

"It's a really tragic and traumatic situation and I think it's definitely made a lot of people more aware that this does happen – Toby wasn't a one-off," said Wilson.

"We had no chance of saving him, but these young people shouldn't be passing away, and as parents and grandparents, we shouldn't be outliving them.

"Ultimately, we'd like to see this as part of a national screening programme so that all young people are screened at the age of 14 or during their life."

News imageStephen Huntley/BBC A head and shoulders image of Trevor Chenery and Jane Wilson. Trevor is wearing a black and white striped Halesworth football kit while Jane has a grey jumper and glasses on. They are sitting next to each other and both looking into the camera. In the background there are blurred photo frames. Stephen Huntley/BBC
Trevor Chenery and Jane Wilson are committed to keeping their son's legacy alive

The local community helped raise thousands of pounds to fund the screening sessions.

Each test costs about £70, so the cost of screening 200 people across the weekend was about £14,000.

"People have just been incredibly kind and generous: individuals, businesses, organisations, football clubs," said Wilson.

"We have enough money in the fund to hold two more weekends currently but we are going to see if we can make this an annual thing in Toby's memory."

News imageStephen Huntley/BBC A head and shoulders image of Callum Reid. He is wearing a black hooded top and looking directly into the camera. Behind him is a white curtain hanging from a curtain rail similar to those seen in hospitals.Stephen Huntley/BBC
Toby's friend, Callum Reid, did not hesitate in signing up to have a heart screening

One of Toby's best friends, 25-year-old history teacher Callum Reid, was among those tested.

The pair played football together, and shortly before Toby's death had been to Wales to climb Yr Wyddfa (Snowdon).

"It really rocked our world when Toby passed away because there were no signs that he was ill," he said.

"So, I think it's really important young people get screened because the way that it can affect families and communities out of the blue is terrible.

"I'm seeing first-hand the impact that can have, and I don't want other people to have to go through that as well."

Follow Suffolk news on BBC Sounds, Facebook, Instagram and X.