Gaming helps woman with rare health condition

For many, gaming is purely about entertainment, but for Lucy, who lives with a long-term health condition, it helps her "escape from her day-to-day routine".

The 31-year-old from Kent lives with congenital muscular dystrophy, a rare genetic condition that causes progressive muscle weakness, and has other complex needs.

"Gaming takes my mind off things. If there are days I feel stressed, I game which helps me zone out from what's going on around me for a little while," Lucy said.

She says playing different genres allows her to "experience things she couldn't in real life".

Describing herself has having "eclectic tastes", her favourites games include Dead by Daylight, Sims 4, Disney Dreamlight Valley, Croc: Legend of the Gobbos and various mobile games.

"If I feel like going on an adventure, I would play a fantasy-themed game," Lucy says.

"Gaming is immersive, and it's a space for me to explore different identities and experiences."

Lucy, the oldest of five siblings, says gaming has been a way for them all to bond.

"When I wasn't able to game for a long time, I used to watch my brothers and sisters game, and we would chat about it," Lucy said.

However, not being able to take part meant Lucy could not be fully involved and join in the fun with her family.

With the help of the charity SpecialEffect based in Hampshire, which provides accessible equipment for gamers, Lucy says she can be actively involved.

She uses a joystick and an adaptable and customised controller with light-touch functions.

"I've made some amazing friends from around the world in recent years, I've known them for about three years."

Lucy regularly travels to Naomi House & Jacksplace hospices, near Winchester, to receive respite care.

The hospices supports more than 500 children and young adults from across central southern England.

Charlotte Figueras, head of Naomi House & Jacksplace, said the hospices focus on "independence, empowerment and dignity for the young adults".

"Supporting young people such as Lucy to continue doing activities they enjoy enhances quality of life and helps them maintain their identity," she explained.

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