Rare diseases12 Nov 2025'My son, 4, has childhood dementia - I'm heartbroken'Tammy McDaid is raising funds to help her make memories with her son Tate.12 Nov 202511 Nov 2025'You have to develop strength and resilience'Rachel Hughes talks about the condition her son has, which affects about one in 14,000 children.11 Nov 202523 Oct 2025Man pleads for unaffordable life-extending drugs Darren Ashton-Lake lives with Friedreich's Ataxia and wants access to a drug to slow its progress. 23 Oct 202529 Sep 2025Mum devastated as charity base destroyed in arsonCharity says everything, including pictures drawn by children who have died, was lost to the fire.29 Sep 202522 Sep 2025'My girl can't walk or talk': Searching for answers in Wales' rare disease clusterFamilies affected by a rare inherited disease say they have had to "scramble" for information.22 Sep 202521 Sep 2025'My daughter's rare condition is killing her'21 Sep 202531 Aug 2025'Just 18 people in the world have my child's rare illness'Juno's mother Gracie, 37, was also diagnosed with cancer during "tough year" for the family.31 Aug 202510 Jul 2025'The last thing you want is to outlive your child'Idrees has a condition that affects his lung capacity, meaning he can easily get out of breath.10 Jul 20257 Jun 2025'My son is one of just 16 who has a condition with no name'Jack is one of only 16 children in the world with a genetic condition so rare it doesn't have a name.7 Jun 2025...