Rare diseases

Tammy McDaid is raising funds to help her make memories with her son Tate.

Rachel Hughes talks about the condition her son has, which affects about one in 14,000 children.

Darren Ashton-Lake lives with Friedreich's Ataxia and wants access to a drug to slow its progress.

Charity says everything, including pictures drawn by children who have died, was lost to the fire.

Families affected by a rare inherited disease say they have had to "scramble" for information.

Juno's mother Gracie, 37, was also diagnosed with cancer during "tough year" for the family.