Use BBC.com or the new BBC App to listen to BBC podcasts, Radio 4 and the World Service outside the UK.

Find out how to listen to other BBC stations

Episode details

Radio WM,3 mins

"Overnight something clicked": Solihull woman diagnosed with rare genetic disorder

Paul Franks

Available for over a year

A man from Solihull's desperately campaigning on behalf of his wife who's one of only two people in the UK to have a rare form of a genetic disorder. Claire Edwards was diagnosed at the age of 44 with AARS2 leukodystrophy in 2019. It affects the development of the brain and nervous system - causing damage to nerve cells which gets worse over time. Claire's husband Paul has given his first radio interview to BBC Radio WM.

Programme Website
More episodes