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Neurologist Dr Jules Montague and William Miller meet Gill and her daughter Natalie who are facing the rare genetic dementia, Huntington’s disease.

Neurologist Dr Jules Montague and William Miller unlock the mysteries of rare dementia.

In this episode, they meet Gill and her daughter Natalie. Gill has Huntington’s disease or HD, a rare inherited dementia. Those carrying the gene have a 50:50 chance of passing it on to their children. Natalie has not yet been tested.

The genetic component of HD and its inevitable outcome are extremely difficult to come to terms with and Gill and Natalie talk openly about this.

Details of organisations offering information and support with dementia are available at the BBC Action Line here: https://www.bbc.co.uk/programmes/articles/1Y8B7y39T07GnTlMsLPJG2S/information-and-support-dementia

Producer: Eve Streeter
Original music: A Brief Encounter by Max Walter
A Raconteur production for BBC Radio 4

Available now

14 minutes

Last on

Mon 16 Dec 202409:45
BBC Radio 4

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Dave

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Susan

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Broadcasts

  • Wed 12 Apr 202313:45
    BBC Radio 4
  • Sat 16 Sep 202314:45
    BBC Radio 4
  • Mon 16 Dec 202409:45
    BBC Radio 4 FM