Disabled Student Diaries 2003
Student Diaries 2003: Ciaran
27th October 2004

About me
Interests:
I'm really into indie rock music and go to lots of gigs and festivals, this summer I went to V and Carling. I read a lot too, currently liking Nick Hornby and am part way through The Divine Comedy (Dante). Socially, there's little better than drinking and larking with mates, and as far as humour is concerned I'm a big fan of The Office and The Simpsons. I've got tickets for Radiohead in November - have you?
School:
I've just left Hereward College in Coventry, a residential college for disabled students, where I took English and Media A-levels. Before that, I was at an integrated high school in Cookridge, Leeds.
University:
Student Services at Manchester Metropolitan provide learning support - people who will assist me taking notes and stuff in lectures - and have been helping me employ my own PAs for personal care. I've had to do a lot of pushing and ringing round to get funding to make this happen. It's been a pain in the arse. My Local Education Authority have provided me with a laptop already, but I'm still waiting on the scanner and printer.
I'm now living in halls on campus. My room is the same size as all the others, but I have an en suite adapted bathroom. The halls have catering, but I've brought along a wide variety of Pot Noodles just in case!
I've bought myself a hideously expensive Yamaha powerchair in preparation for uni. The motors are in the hubs, it's not at all bulky and you can switch between manual and electric easily.
My course is three years long. My ideal job would be working as a music journalist writing for publications like NME or Q magazine.
WEEK 1
Sunday 28 September, 2003

The rest of my life has apparently arrived, introduced itself and moved in for good over the past seven days. Ladies and Gents, welcome to University Life.
As this is my first entry, I suppose I'd better begin with a CV of sorts. My name is Ciaran. I'm 19. I love music and most days I wish I was off somewhere being a rock star. I'm an ordinary, single bloke studying English and Creative Writing at Manchester Metropolitan University (although after having seen the size of my reading list, I think I'd rather be doing a degree in needlework. Ahem).
I also have Cerebral Palsy. I would say you can't win 'em all, but that would be stating the obvious and I'd rather just stick to being vague and cryptic. This writing is, as I'm sure you're aware, part of a weekly diary to document my first month of life as a Genuine Student.
At this early stage, I suppose it would be feasible for me to categorise the events and happenings of the past week into a good and bad, pros and cons type list. But that seems far too clinical to me. Consequently, if no one else has any objections I think I'll just ramble until my fingers get sore or I fall asleep. That seems fair enough.
First off, let me say that pretty much everything you hear about the first week of university is a lie. It is billed as a week long orgy of sex, drugs and booze - but if my student flat is any shining example of typicality, it's more like a week sitting in your room feeling homesick and wondering if you've done the right thing. It's about frequently asking yourself how the hell you could ever have thought that trading in all the comforts of home for a room the size of a shoebox, a stack of watery Pot Noodles and a house full of people who seem to deliberately avoid each other as much as possible was a good idea.
That's not to say things don't or won't pick up - I've been out a fair bit this week, drunk more than my fair share of recreational beverages and heard more names than I'll ever remember. For example, on Thursday night nobody in my flat was doing anything, so I went out with some people from the halls across the road (one of whom is my PA, but I'll come to that later). It was a good laugh.
As far as access in general goes, from what I've seen so far there are definitely some major improvements to be had. To start with, if I remember rightly my room is described by the University as "adapted accommodation". If this is true, then in this case adapted clearly does not mean accessible. In the end it comes down to the fact that there simply isn't enough space to function comfortably - I have to keep my en suite bathroom door open just to turn my chair around in the bedroom. Also many of the doorways aren't that wide.
There are other issues - such as shelves being in the wrong place and the fact that I'm the proud owner of what is possibly the world's smallest and most awkward wash basin - but to go into any more detail right now would just be depressing.
Going out is a 50/50 experience in that there's drop curbs almost everywhere, which means if you're on your own and you happen to encounter a non negotiable drop you're pretty screwed. It's the same with bars and pubs - of the main drinking holes I've visited this week, one had steps up and another had no steps but a disabled loo with a door so narrow I had to literally 'go' in the doorway.
The union bar had a loo that was on another floor entirely (according to the guy on the door anyway); turns out there is actually a big enough loo in the Men's. The Cornerhouse is fairly on the ball except you have to ask for a key and again it's pretty small once you get in.
Anyway, this portion of the tour of my mind is now ending. Lectures start tomorrow.

Monday 29 September 2003
The uni provides Learning Support assistants to help during lectures and seminars, but no help turned up for this seminar; luckily all I needed to do was scribble a few facts down on some handouts, which I managed. Met a few people, briefly.
Am having a meeting tomorrow with my stepdad and my two PA's to discuss how that whole situation is going. It's a very odd thing to have to do, to start organizing your own care after being used to having it done for you for so long. At the moment, I must admit it feels very strange trying to step up my independence levels and simultaneously paying two people vast amounts of cash to be at my disposal. It's almost isolating in a way. But I suppose it will become clear in the coming months what works and what doesn't. Early days, as they say.
Tuesday 30 September 2003
Might go out to a place called The Zoo later tonight, with some people from halls - as everyone in my flat still seems pretty quiet. We'll see.
Had my second seminar today (as opposed to lecture). Seminars are the smaller classes where you sit and discuss stuff and make various attempts at sounding intelligent. It's nice, but this particular seminar is a straight three hours. Something I'm realising about uni is that you really have to love what you study, because pretty much all your energy is concentrated on that one subject for the entire time you're here, and there's really no time or way to do anything else academically. Once you're in, you're in.
My personal tutor is a nice guy too. He must be in his 50's, he's from Mexico and for some reason he's acknowledged on the inside sleeve of the edition of Dante's Divine Comedy that I have. But what's more impressive is that last week he went clubbing and met Jordan, the supermodel, and he's mates with Peter Hook (Joy Division/New Order bassist). Rock 'n' roll.

Wednesday 1 October 2003
Didn't go out last night either, as something slightly odd happened. I can't be bothered to go into great detail, but basically Matt (one of my PA's) and myself were going to go out to this place called The Zoo. He told a load of people that we were planning to go there and invited them along. They said they were all too skint and/or tired, and then promptly went anyway without telling us. It pissed me off, and I started to wonder if it was because they found it uncomfortable to be around a disabled person. I dunno. Maybe it's just coincidence and they genuinely all changed their minds about going out, but it still seems a bit off to me.
I have noticed that quite a few people I've met have obviously had NO real life experience of anyone with a disability, and are either extremely patronizing or just try and pretend you aren't there. Both are extremely annoying. I think I'm gonna have to work hard whilst I'm here to educate some people and get some opinions changed. I've certainly got my work cut out for me.
Thursday 2 October 2003
Today was my busiest day, but in the few hours I had off I took a trip to the supermarket and did a fairly big shop. I don't mind admitting that it's the first time I've really done that sort of thing on my own (well, I say 'on my own', but Jo was with me) and it was quite an experience. There's a fair amount of unreachable shelves out there in the big world of corporate supermarkets. Also, a woman came up to me and asked me about where I got my wheelchair, as her husband wanted one of a similar style. Nice lady. I hope she finds what she's looking for.
Anyway I'm going to leave it here for now, as I'm supposedly going out in a bit. Hope it turns out better than my last attempt at social integration. Time will tell, I guess.
Friday 3 October 2003
I went out to a 'School Disco' night at the union bar, where the head DJ was none other than Mr Pat Sharpe. There was a gang of twelve of us - which included me, Matt and (I presume) some of the people who were supposedly too tired to come out with us on Tuesday. We get in and of course it's packed - I would say between 1,000 and 1,500 people in total. After a few drinks one of our group decides we should do our best to get to the front in time for the arrival of Mr S. After a few minutes crowd negotiating this is, surprisingly, achieved and we are all pretty much at the foot of the stage, waiting in the heat and the sweat to see the man himself.
Then all of a sudden, two bouncers on the other side of the stage spot my chair, amble over and simply lift me on stage. The main attraction has not arrived yet, you understand, so at this point I am literally the only person on stage apart from the bouncers. Naturally, the place goes wild. Then, when Pat arrives, I rush over to greet him and tell him what a legend he is.
However, the greatest moment of all comes later in the evening when he hands me the mike and asks me what I think of his mullet wig. I tell him I think it looks beautiful and he turns to the entire crowd and says, "Everybody, Ciaran says it's beautiful!" Needless to say I got a lump in my throat and, as far as I can remember, I spent the rest of last night drinking vodka and apple juice in halls until about 4.00am. I must now go and drink some fluids.
Saturday 4 October 2003
I was going to go meet my mate Mark tonight for a drink somewhere in Deansgate, but it turns out we are both as lazy as each other and can't really be bothered. I'm knackered anyway. Good night.
Sunday 5 October 2003
One of my fave bands, Elbow, were playing at the Academy. I went down there with the intention of buying a ticket from a tout and getting in. I hadn't thought that the tout prices might be ridiculously expensive and so decided - after going up and down the road a few times and seeing that all tout prices were easily up to four times the original price of a tenner - to give it a miss. I was with one of my PA's, Peter, and we decided just to go for a few drinks. As we walked away from the venue and around the corner on to a quiet street, I noticed an open window and a very familiar sound. Stopping to listen, we realized we were hearing none other than Elbow practicing their harmonizing skills in their dressing room. Neither Peter or I recognised the song - but still, I thought it was pretty cool and that you guys should know. If you don't have any Elbow go and get Asleep In The Back and Cast Of Thousands now. I guarantee you'll thank me for it later.S
WEEK 2
The second week...

Monday 6 October 2003
I'm going to head off and wrap things up soon, as my computer keeps shutting itself down for no apparent reason - which is very annoying, especially at this time of night. A few things first, though. First, I've had no support in any of my lectures or seminars yet. This isn't too bad right now as it's only the beginning, but as things pick up speed I will need notes taking. Access Summit in Manchester rung me up nearly a week and a half ago and told me they'd be in touch to sort something out. They lied. This is clearly crap.
Second, my room. They've put one grabbing bar in the bedroom that I needed; now they need to lower the bed so I can actually use the bar effectively, and they need to put another bar in so I can get up from the loo easier. Also, it would be much easier if the bathroom door was a sliding door. I'll get onto all of this.
Thirdly, my equipment hasn't arrived yet. I don't know what's going on, but apparently my LEA hasn't received confirmation that I've started uni yet. God knows why.
Lastly, some personal mentions for my friends at my old college who've started reading this diary (please don't edit these out). Joe, I know you aren't linked to any football related scams that might be going on right now. You're a wholesome chappy from Blackpool. Besides which you can't play football anyway. You're in a WHEELCHAIR. Patrick, you Geordie nutcase. If you're reading this I expect you need a piss. Stop reading and go. Russell, you are a good friend. You have an unusually large skull and a tendency to stroke the feet of all the wrong people. Hanrahanrahan, you're a tart. I'll see you all soon.
WEEK 3
We sent each of our students a disposable camera, so the photos appearing on their pages this week were all taken by them or their friends. Witness the full horror of Ciaran's student kitchen!
Tuesday 7 October, 2003

If you don't mind I'm going to leave this story here for now and continue it tomorrow evening - I know it's cheating slightly, but as I said before I really am rather smashed right now and I (technically) need to be in a lecture in about 8 hours. It might be a good idea to at least attempt to get some sleep. Maybe.

Thursday 9 October, 2003
That reminds me. When I first started here I was promised access support for my seminars and lectures for writing notes, etc; but I'm still getting no help whatsoever! It's getting stupid. I will ring the access provider company in Manchester at some point within the next week and scream at them. I have also decided to buy a dictaphone for lectures. It'll make things easier and that way I can actually take something away from them, rather than just sitting there. I may as well not bother going otherwise.
Before I continue with my Thrills story, I'd just like to note that today is John Lennon's birthday. He would be 63 now if he hadn't been killed. R.I.P. John - "Imagine all the people, sharing all the world."

Friday 10 October, 2003
After Springbok we went on to a slightly cooler but equally expensive place called M2. Again, I was neither searched at the door nor charged the entrance fee. I certainly hope this is going to happen regularly. That was quite a good bar, although I did feel slightly forgotten when everyone I was with decided to sit (or rather stand) around a high round table. It's hard to strike up conversations with people when you're sat down and they're stood up - and it's a bit more difficult when there's a chunk of table in your face. Eventually though, some seats freed up and everyone moved.
Had another complete stranger come up to me, shake my hand and tell me that his mate was in a wheelchair - so apparently that meant he was "feeling my vibe". Fair enough. Some people are weird.
It's nearly 5.00am on Saturday morning now, so I'm off to bed.
WEEK 4
The forth week...Ciaran's final diary week.
Monday 13 October, 2003
Today I went and got a dictaphone for lectures and spent much of the day saying stupid things into it, then playing it back at either faster or slower speed - a very productive afternoon. Tomorrow I've decided I may have to forgo my three hour seminar as I'm feeling a bit headachey and crap again. I'll see how I feel when I get up, I suppose.
By the way, my bed has been lowered and they've put another grab bar in the bathroom. Now I just need to get the door converted into a sliding one and my room will be pretty much sorted. I found out what's going on with my LEA equipment as well - my computer needs more RAM in it before they can install the stuff. So I'll sort that out for definite this week.
Oh yeah, I never finished the story about what happened at The Thrills gig, did I? I went with Peter, got there, and the access provisions at the Academy were, by all accounts, piss poor - despite what they had told me on the phone. So I ended up watching the entire thing from the sort of side/back area where all the equipment, amps etc are stored.
Afterwards, I had just bought a Thrills hoody and was coming away from the venue when we casually spotted what Peter thought could well be The Thrills' tourbus ... well, one thing led to another and we ended up backstage with the band. Actually, that's not strictly true - we were personally invited backstage to meet the band, and I can honestly say that The Thrills are all genuinely nice guys, especially Daniel and Padraic who bought me beer. You should all go out and buy their album So Much For The City, and I urge you to go see them live if you get the chance. I think my review of the show is still out there somewhere on the BBC Manchester website (yes, it's here - Ed)
Anyhoo, I'm off to bed, so I'll see you all next week. TTFN.
Tuesday 14 October, 2003
One thing I did do was go and buy a dictaphone to help me in lectures - recording the entire thing will mean I have to go back and pick out the relevant notes, effectively twice the work, but I suppose I'll remember more stuff that way. Anyway, despite what sceptics may say I think you do pick up quite a lot from just being in the lectures in the first place, even if you don't take notes. Or maybe that's just something lazy people say. I think it's probably a healthy mix of both.
Tuesday 15 October, 2003
Ended up going out last night to the Academy - there wasn't a gig there, just a 'night' on. Cheap beer (especially if you sneak some in), cheesy tunes - interspersed, thankfully, with a few classics - and a lot of drunk people dancing. A good time was had by all, although there was a slightly cringeworthy moment when the exceptionally pleasant female pushing me back to halls (she insisted) said, "This is a bit like pushing my four-year-old brother in his pram." It was, I'm sure, meant as a totally innocent and heartfelt comment that unfortunately came across as unintentionally patronising. However, in my book it is - and should be - classed as one of those things that you just don't say.
It made me realise that however hard you try to educate and inform, some people will never 'get it'. It was a bit of a conversation killer - the tumbleweeds rolled past - and I was slightly taken aback and disappointed.
Anyway, back to the grindstone - I'm off to see Travis at the Apollo tomorrow night and this essay needs doing tonight. The gig can be my reward for not missing my first major university deadline (hopefully).

Thursday 16 October, 2003
Friday 17 October, 2003
So even though I told him that, yes, he would need to get the ramps out, he insisted on having a go just by tipping the chair up and trying to get me in that way. When this didn't work, he finally got the ramps out. I then tried to drive up the ramps, but because they were the crappy ones and my driving isn't exactly precision style at the best of times, I was a little off-centre and didn't quite make it. I prepared to reverse and give it another try, but the driver insisted that I wouldn't fit in and he would have to call a 'wider' cab that could accommodate my chair. This was clearly rubbish, as I have managed to get in the normal cabs before when someone else has been there with me to lend a hand - It's a bit of a squeeze but still manageable.
So I argued with this guy for as long as I could be bothered and eventually let him go, but not before I sat and watched him order another cab. I then sat in the freezing cold and waited another twenty minutes for a second taxi. This time, thankfully, both the driver and the cab were a lot more hospitable - and at least I've discovered that getting to the Apollo only takes 10 minutes from where I am. The whole thing was very frustrating, though.
Travis rocked, which made the whole fiasco (just about) worth it.

Saturday 18 October, 2003
Sunday 19 October, 2003
Today, I met up with Matt and a guy that he knows who is in his second year doing medicine. He wants to use me for some project or other he's doing, which involves interviewing me and asking me questions about the ol' Cerebral Palsy and how it affects my daily life. I've agreed to it as it seems like it would fit in quite well with this whole diary thing.

Monday 20 October, 2003
Today I didn't do too much though, just a two-hour seminar on research methods. It dragged slightly, I have to admit. I also bought the new album by The Strokes earlier. First impressions are that it definitely equals its predecessor. Very cool.
Anyway, back to business. How would I sum up uni life so far? The answer is: I can't. There is no epitaph or concise, witty and memorable one liner that I can drum up to effectively describe or summarise the past month. What I will say is this: you just have to let it happen and dive in at the deep end, because if you spend too much time worrying about the situation you're in - rather than simply accepting it - you'll just go under. I've realised that over the past few weeks.
Without trying to sound sycophantic, keeping this diary has helped me to make sense of what's been going on, and understand more about my situation personally. Everything from getting PA's recruited, through sorting out my room, to meeting The Thrills and Pat Sharp, as well as just getting to know new people and being away from home - it's all been a huge bloody great learning curve. Bearing in mind what has happened in these first few weeks and all the stuff I've got up to, I think that the next three years are going to be very interesting indeed.
I've very much enjoyed writing this diary; I hope all you guys have enjoyed reading it. It's a hell of a journey so far and, as the main man Vinnie Jones put it at the end of Lock, Stock - it's been emotional. Over and out.
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