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| Thursday, 28 March, 2002, 10:49 GMT Iris, Alzheimer's and us Angela and Ted Clayton-Turner: "It will get worse" Jim Broadbent has won an Oscar for his portrayal of John Bayley, who cared for his wife, Iris Murdoch, as she descended into Alzheimer's. Here Angela Clayton-Turner, whose husband Ted was diagnosed with the disease five years ago, compares her experience to that shown in the film Iris.
But I'm like John Bayley in that I'm fairly relaxed about mess. It must be much harder to cope with this disease if you try to keep up appearances. When she tipped out of the moving car I was amazed - I'd never thought of anything like that happening. I made a mental note to myself to make sure Ted's in his seatbelt, to make sure the central locking is on.
And at home we'd decided to change a cracked loo seat with a wooden one. I got back from work one day and Ted had changed the seat in the loo upstairs instead of the broken one downstairs. Dazed and confused When the specialists finally confirmed it was Alzheimer's, Ted decided to take early retirement rather than muddle on at work for another six months or so.
I also got very keen that Ted should be on Aricept, a drug which eases the symptoms. The health authority wouldn't fund it and so I got my pen out and wrote some letters.
Although that makes life more painful for Ted, it makes it much easier for me because we're together - Ted hasn't disappeared into his own world. 'Lots of love' What I've learned is that we can't live the same sort of life. And we have a different set of priorities now - to enjoy life, and not let what's happened and what it's going to be like in the future mess us up for today.
We have had to adapt holidays as it would be no good joining a coach tour of 30 or 40 people living out of a suitcase. The last time we did that was five years ago in Poland, and Ted was totally fazed. Instead we go on barge holidays. Ted can sit and gaze and if I want to be a bit more active I can help with the locks. We know things are going to be worse. But our basic relationship hasn't changed - there's lots of love and openness. I have thought: 'My goodness, this must be hell if you don't like your husband.' |
See also: 25 Mar 02 | Oscars 2002 14 Jan 02 | Oscars 2002 Internet links: The BBC is not responsible for the content of external internet sites Top UK stories now: Links to more UK stories are at the foot of the page. | |||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
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