Yay. Ta, Mama? Yay, good girl.
So, Piper has Septo-optic dysplasia which, one of the main features of that condition is that it affects her vision.
Twinkle twinkle little star.
Most of what she receives is through touch and listening. We knew straight away when we moved house we wanted to do some kind of area for her. The sensory room was just a plain under stairs cupboard. We painted it all black and added some white on there for the contrasting colours, which is the best thing for her eyes. We built our own sensory board -we've never done any type of building whatsoever. There's just loads of little bits that - just door handles, just little bits and bobs that are going to be in the real world, but also are actually quite playful when you break them down because it's really important that Piper learns how things function.
Knowing how a door handle works or a lock, using it in the correct way. I would advise a sensory space wherever you can fit it in. It was cheap. We paid for paint a wooden board a few household objects, but most you'll have anyway in your junk drawer. It's honestly been unbelievable for Piper's development, and just, you know, making our life a bit more normal.
Meet Stevie, Jade and Piper, who has septo-optic dysplasia.
Stevie and Jade describe how they have created a DIY sensory space for Piper using an assortment of objects and different paints.
For more information or advice on septo-optic dysplasia, visit the Great Ormond Street Hospital website.
