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INSIDE THE ETHICS COMMITTEE
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Inside the Ethics Committee
Wednesdays 06 - 27 Aug 2008 8.00-8.45pm
Repeated Saturdays 09 - 30 Aug 2008 10.15-11.00pm
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Wed 27 Aug 2008 (rpt. Sat 30 Aug 2008)
Programme 4 - Your Comments

Disclosing Illness in Children

When is the right time to tell a child that they have a serious medical condition? And what happens when a mother’s refusal to tell, stops her child from getting a treatment that could be life changing?

Sarah has Hepatitis B, which she caught from her mother at birth. Sarah’s mother is adamant that she doesn’t want her daughter to know what is wrong with her.

But Hepatitis B is highly infectious, through blood and sexual contact. As Sarah reaches adolescence, the medical staff become increasingly uncomfortable about keeping the diagnosis from her.

Furthermore, Sarah’s ignorance about her condition could jeopardise her participation in a drug trial that could be life changing.
"A very interesting programme. Our child has a brain tumour and we are trying to decide what to tell him, and when. The programme put forward ideas that we have not heard elsewhere. Within the medical profession, it seems that advising parents on this dilemma is always somebody else's problem, so thank you Radio 4."
Clare

"Once again an interesting programme. However, once again it failed to take into account the effects of choices on society at large. It's all very well making low level decisions about the effects on individuals involved in any situation but the decisions discussed, especially medical trial related matters, affect society too and that third angle needs examining as well as it can often be far more important than just a couple of individual lives.

"I hope the next series adds that additional level of complexity in decision making."
Paul

"Thank you for this programme; I enjoyed it and the careful presentation of issues.

"As a psychotherapist I felt sorry that Sarah's mother did not seem to have been given the opportunity to discuss with a psychologist or therapist the question of telling Sarah her diagnosis. This could have opened up the personal issues which, understandably, were clearly unresolved and preventing her from being able to step back and consider the question more broadly before then taking whatever decision she thought best. I think there is a possibility that taking this route could have saved the professional team, and Sarah's mother herself, much anxiety."
Miranda

"Dear Presenter, (I apologise for not remembering your name!)

"This is one of the best programmes on offer and is a welcome antidote to the more aggressive nature of the Moral Maze, which I also never miss. However, your calm and measured approach, the dissection and insightful analysis of the problems and their context make this an unmissable hour. Other people's dilemmas are compelling journeys for this listeners' intellect - but the programme is so authentic that the real humanity at the centre of every decision is clearly revealed. I very much enjoy the revealing of the situations and your guests are all so measured and thoughtful. It is a programme where I feel all the avenues are explored and guests are not rushed as they discuss and expose us to very real life decisions.

"And you lead it on without cutting people off. It is a real joy to listen to, and the fact that you do very few each year makes the series even more to be treasured as the very best of what the BBC can give."
Martin

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