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3 Oct 2014 BBC Homepage BBC Radio
Radio 4 Home Truths Listen Again About John Peel Help Feedback Like this page? Mail it to a friend		The Webb family XP Family Listen to the item Like most 9 year olds, Alex would like few things more than a bit of a kickabout in the sunshine with his mates. But he has a condition known as XP – Xeroderma pigmentosum, a skin disorder effecting about 1 in a million, so Alex must avoid sunlight. Alex andparents Sandra and Steve and sister Holly, have done a pretty good job of working out how best to live with the condition. Call the BBC Actionline on 0800 044 044 Discuss this story on the Home Truths message board Tell us your experiences... Useful Links XP Support Group UK XP Support Group USA The BBC is not responsible for the content of external websites.

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