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Last Updated: Wednesday, 10 November, 2004, 12:41 GMT
Surgeon plea for sick baby
Luke Winston-Jones with his mother Ruth
Ruth Winston-Jones is looking for a surgeon to help her son
The mother of a terminally-ill nine-month-old baby is looking for a heart surgeon to perform a private operation.

Luke Winston-Jones, who has heart and breathing problems is seriously ill at Alder Hey Children's Hospital in Liverpool.

His mother, Ruth Winston-Jones, from Anglesey, has confirmed that she is approaching private specialists to help him.

She wants to see if the hole in Luke's heart can be repaired.

"If anything were to happen to Luke then I would put it down to the hole in his heart," she said on Wednesday.

Resuscitation

She said one specialist has told the family he would be willing to look at Luke if he were in hospital in Bangor.

He is expected to be transferred to Ysbyty Gwynedd in the town but no date has yet been fixed.

Luke has the rare Edwards Syndrome and has never left hospital.

The baby's condition severely affects most organs of the body and few babies survive beyond a year.

He was born by emergency caesarean at a Bangor hospital, Ysbyty Gwynedd, on 30 January.

Due to his serious cardiac defects, including two holes in the heart, he was moved to Alder Hey children's hospital in Liverpool.

'Fighting chance'

Luke has suffered cardio-respiratory arrests and required resuscitation.

Last month the High Court in London ruled that doctors could withhold life-saving treatment from Luke if his condition deteriorates.

The judge, Dame Elizabeth Butler-Sloss, president of the High Court Family Division, ruled that the baby should not be resuscitated by mechanical ventilation.

But, after a last-minute concession by the hospitals, he will still have the chance to receive cardiac massage.

Dame Elizabeth Butler-Sloss
Dame Elizabeth said cases on life-saving treatment were 'often the most difficult'

Meanwhile, Dame Elizabeth told a conference on Wednesday of the difficulties judges face in making decisions about withholding treatment from critically ill patients.

She said this was "not because the law is confused or difficult but because of the emotions of the people involved in the case".

'Diverging views'

The judge was speaking at the Withholding Treatment conference in London, organised by the Royal Society of Medicine and the Disability Rights Commission.

Dame Elizabrth said innovations in medical science had changed the social landscape almost beyond recognition.

"From birth until death, and most things in between, medical advances have transformed our expectations," she told delegates.

"Life-saving, life-prolonging technologies have made a profound difference to the treatment options for the terminally ill.

"Inevitably there will be diverging views as to the appropriateness of some treatments.

"Doctors sometimes disagree with patients and their relatives, and patients themselves may disagree with their family and friends.

"It is often the role of the law to set limits on what is and is not appropriate."


BBC NEWS: VIDEO AND AUDIO
The court battle over Luke Winston-Jones



SEE ALSO:
Doctors win right to let baby die
22 Oct 04 |  North West Wales
Q&A: Luke Winston-Jones' case
22 Oct 04 |  Health
Mother agrees baby cannot recover
21 Oct 04 |  North West Wales
Heart op baby's royal support
20 Jul 04 |  North West Wales


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