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Jan Valentine. Kayleigh's mother
"I think parents should take these forms home with them and discuss them and read them through"
 real 28k

Friday, 24 March, 2000, 15:43 GMT
Parent welcomes donation rules
Janet Valentine
Janet Valentine is unhappy with organ retention
The mother of a baby girl whose organs were removed without permission when she died has welcomed new donation guidelines.

Jan Valentine, from the Wrexham area, was heartbroken when she was not consulted about the removal of her daughter Kayleigh's organs at Alder Hey Hospital in Liverpool.

New guidelines just published by the Royal College of Pathologists will give parents more say.

Mrs Valentine, though, said the situation would only be resolved when the rights of parents were enshrined in law.

Other families from Wales whose children's organs were also removed at Alder Hey joined to launch of a campaign to change the rules on parental consent.

They had earlier called for a full public inquiry into Alder Hey after a public outcry at organ removal.


Kayleigh Valentine
Baby Kayleigh Valentine
A dozen families from Wales are among hundreds at the centre of a scandal.

Kayleigh Valentine, who was being treated for heart defects, died under anasthetic. Her mother denies every having signed consent forms for her daughter's organs to be removed.

"I think it is absolutely necessary that they must train doctors and nurses and the people who are going to go to the parents and give them the donation forms," said Mrs Valentine.

"It is a most distressing moment. I think parents should take the form home, discuss it and really read it through.

"I personally would like to see this carried through to become law, but it is a step in the right direction."

Alder Hey confirmed that between 1988 and 1995, a total of 850 organs were stored at Liverpool University, by the then head of their post-mortem team, Professor Dick van Velzen.

Liverpool coroner Andre Rebello said the removal of Kayleigh's organs had appeared to be in breach of regulations.

Solicitor Ian Cohen, who is acting on behalf of 70 parents, said he had learned the practice of organ removal may have been widespread.

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See also:

03 Dec 99 | Health
Inquiry into organ scandal
03 Dec 99 | Health
Organ stripping: The reaction
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