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Thursday, 4 April, 2002, 14:19 GMT 15:19 UK
Mother's appeal for rise in kidney donors
Helena Jones
Helena Jones's family has been affected by kidney disease
A campaign to double the number of organ donors has been launched in Wales, headed by a mother whose four children suffer from kidney disease.

The Helena's Hope campaign, named after south Wales grandmother Helena Jones, focuses on a family who have been badly affected by kidney disease.


I just hope the donor card will help all those people out there who need transplants because it is a second chance at life

Helena Jones
At present, only 19% of people in Wales are on the organ donor register in Wales - a statistic the National Kidney Research Fund is trying to improve.

Mrs Jones, from Glyn-neath, hopes the campaign will help boost this figure.

"I do feel for all kidney patients out there, and not only for kidney patients," said Helena Jones.

"I just hope the donor card will help all those people out there who need transplants because it is a second chance at life."

However, some people argue a new system of presumed consent, where people have to register if they are not willing to donate organs, would be more effective.

Waiting list

Four of Mrs Jones's five children have suffered from a genetic kidney condition.

Two of them, Robert and Wayne, have had successful transplants, but a chronic shortage of donor kidneys is delaying treatment for brother Richard and sister Helen.

Dialysis machine
Two of Helena's children rely on dialysis machines
The pair are still on dialysis, and are among around 200 people in Wales who are currently awaiting a kidney transplant.

"Robert and Wayne are fine now they have had their transplants," said Mrs Jones.

"I just hope and pray transplants will come for Richard and Helen for them to have a better quality of life because, at the moment, dialysis is keeping them alive."

Her son Wayne described his transplant as "life-changing".

Wayne Jones
Wayne Jones: Life-changing transplant
"You're ill one day and well the next," he said.

"You've got to take a couple of tablets in the morning and the evening, which is no problem at all."

Nearly 9,000 people in Wales suffer from kidney disease, which can affect people from all walks of life.

The National Kidney Research Fund is dedicated to improving the understanding of kidney disease, its causes, treatment and management.

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News image BBC Wales's Susie Phillips
"Helena Jones and her children suffer from a genetic form of kidney disease"
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