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Last Updated: Tuesday, 4 May, 2004, 09:59 GMT 10:59 UK
Club helps fatal illness brothers
Hartley family
The boys are four of only 100 people diagnosed with XLP
A football club is helping to find donors who can save the lives of brothers with one of the world's rarest fatal conditions.

The four Hartley brothers from Romsey, Hampshire, are among only 100 people to suffer from XLP, which attacks the nervous system.

Their father David made an appeal for life-saving bone-marrow donors before a Bournemouth FC game last month.

On Tuesday the club hosts a blood-donor day to check for suitable matches.

Still looking

The Anthony Nolan Trust, which maintains the register of donors, says the response to the Hartley's appeal so far has been "incredible".

Without treatment the boys are unlikely to live far into their teens.

Last week a match was found for eight-year-old Daniel, and mother Allison Hartley is a match for her eldest son Joshua, 12.

But the family are still looking for suitable donors for Nathan, 10, and Luke, four.

All men aged between 18 and 40 are invited to give blood at the Bournemouth FC stadium between 1600 and 2000 BST on Tuesday.


Those interested in joining the register should call 0901 88 22 234 or visit the trust's website. Calls cost 25p a minute.



LINKS TO MORE HAMPSHIRE/DORSET STORIES


 

SEE ALSO:
Donor is found for second brother
24 Apr 04  |  Hampshire/Dorset
New appeal for life-saving donors
27 Mar 04  |  Hampshire/Dorset
Hundreds give blood for brothers
13 Mar 04  |  Hampshire/Dorset
Bone marrow appeal
10 Mar 04  |  Breakfast
Hundreds pledge to help brothers
06 Mar 04  |  Hampshire/Dorset
Brothers seek life-saving donors
04 Mar 04  |  Hampshire/Dorset


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