I, too have osteo genesis imperfecta,(wheelchair user) and at the age of 52, past my sell-by date.

However, at an early age, got off my backside, and was in employment for a total of 26 years.

Since the the International year of the disabled there have been great strides forward in access and facilities for disabled people.

I would still say that more has to be achieved but please tell me the meaning of 'independent living' Everyone needs the help of others to e.g. to make a cup of tea.

Equally, disabled people require assistance on a 'supported' basis from others. I would be the first to agree that sadly most things seem to come at a price.

There are concessions available, such as when going to the cinema, the carer is allowed in for free.

In addition, those disabled people who receive Direct Payments, have seen their care wittled away, and it is no longer possible for them to lead a valuable part of society.

During my time of employment I strived to improve life for disabled people, but I fear that since that time less as been achieved. Money seems to be the answer, but a great amount can be achieved with discussion and liaison between relevent parties involved.
Susan Pike

I became print impaired after a road traffic accident and also have short term memory and chronic fatigue issues as a result. When I left work I tried to retrain and have been studying at a London university for six years now...

I have a DSA (Disabled Students Allowance) but it is here that the problems start - there is apparently NO quality control on the standards of support I receive.

The University's policy is to recruit support workers from the student population. This doesn't work as they either get involved in personal learning, leave due to personal issues (leaving me high & dry) or simply can't do the job for which they are employed.

The only option for me is to apply for mitigating circumstances for their poor performance and put in 'formal complaints' to try and galvanise the University into action. It causes me an immense stress load and I have no control over the quality of 'support' I get... A level playing field is what the DSA is supposed to give me but it doesn't - it's a split field with a 60 degree incline and I have to play uphill with my hands behind my backs, my feet tied and blindfolded.

I'm expected to jump between the two pitches because it's politically correct to do so. It's not possible and there is only a biased ref who only sees how it is on the field I can't reach, to whom I can appeal - but they are so far off they can't (or won't) hear me!!

Apologies to be negative but I've watched too many 'success' stories highlighted because it's politically correct to do so. If your a balanced programme you'll air the difficulties too!
Elaine Eldridge

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