Alison Purseglove : says she feels isolated

As well as being crippled by the disease he has also had cancer and diabetes and he is blind in one eye.

Mrs Purseglove said: "I care for my husband for at least 20 hours a week without any support whatsoever.

"I am responsible for giving him intravenous injections and other such treatments and I have no professional medical training at all.

"On many occasions Ian has been discharged from intensive care in hospital straight to me.

A problem shared

"My GP isn't interested and there is no support from district nurses.

"I feel very isolated. It does get you down and you feel that you are a horrible person because it gets you down.

When you are tired, depressed or exhausted you feel it is your fault

Alison Purseglove

"And when you are tired, depressed or exhausted you feel it is your fault."

Mrs Purseglove believes her life would be dramatically improved if she had the opportunity to meet other people "in the same boat."

"Nobody understands how you feel," she said.

"Even friends and family judge you. Many turn round and say 'well, it's not his fault he is ill' and just expect you to get on with it.

"People's attitudes often stop you asking for help. The only people who understand how you feel are other carers.

"I think sharing your experiences with other people is even more important than respite, which for me has never been a prime concern."